Under the scan: patients’ views of X-rays and scans in the UK

"The survey findings highlight the current lack of capacity in UK radiology services to deliver X-ray and scan results for all patients within 28 days."

Under the scan: patients’ views of X-rays and scans in the UK

The Patients Association and The Royal College of Radiologists

August 2016

Read more here. 

Improving the user experience of patient versions of clinical guidelines

"It is important for guideline producers to maximise the user experience of the public when they access patient versions of guidelines, particularly given the current low level of access and awareness. One size does not fit all and guideline producers need to strike a balance between keeping the patient version simple and providing sufficient information to facilitate shared decision making and empower the public. Guideline producers may find the results of this study useful in designing their own patient versions."


Improving the user experience of patient versions of clinical guidelines: user testing of a Scottish Intercollegiate Guideline Network (SIGN) patient version
N Fearns, K Graham, G Johnston, D Service
BMC Health Services Research, 2016, 16:37 DOI: 10.1186/s12913-016-1287-8


Read more here.

Patient-Reported Measures

"As health care organizations focus more on keeping people healthy and delivering value, incorporating patient-reported measures (PRMs) as part of their overall performance improvement measurement system will be crucial."

Patient-Reported Measures
L Savitz, K Luther
Healthcare Executive, 2015 Jan;30(1):74-77

Read more here (free registration required).

Collaborative Care and Support Planning

"The Collaborative Care and Support Planning programme aims to encourage a shift in general practice to bring the person with long term conditions (LTCs) to the centre of the decisions which are made about their care, working in partnership with the practitioner."

Collaborative Care and Support Planning
Royal College of General Practitioners
January 2015

Find out more and watch a video about the programme here.

Decisions of Value

"Decisions of Value is a project led by the Academy of Medical Royal Colleges and the NHS Confederation that has spent six months studying what is influencing the decisions made in the NHS. It brings together a large amount of research to show how decisions impact on the value delivered and how this extends beyond Whitehall to the front line."

Decisions of Value: full report and findings
NHS Confederation, Academy of Medical Royal Colleges
October 2014

Read more here.

Community mental health survey 2014

"While there were some positive findings, particularly for questions asking about contact with staff, survey results show that improvements are needed across many other areas asked about in the questionnaire. This includes:

communication and information.
reviewing care.
involvement in decisions.
support and understanding with other areas of life."

Community mental health survey 2014
Care Quality Commission

Read more here.

People in control of their own health and care

"The idea that people should have a stronger voice in decisions about their health and care, and that services should better reflect their needs and preferences, has been a policy goal of politicians and senior policy-makers in health for at least 20 years. Patients want it, and the evidence shows that when they are involved, decisions are better, health and health outcomes improve, and resources are allocated more efficiently."

People in control of their own health and care: The state of involvement
C Foot et al.
The King's Fund
November 2014

Read more here.

Service user involvement: impact and participation: a survey of service user and staff perspectives

"The findings have shown that there is a high level of participation in service user involvement activity and a general endorsement that involvement has a positive impact. The percentage of service users and professionals who reported positive outcomes from activities they have been involved with was high, regardless of the type of activity they had experienced and their level of engagement in user involvement work."

Service user involvement: impact and participation: a survey of service user and staff perspectives
E Omeni, M Barnes, D MacDonald, M Crawford, D Rose
BMC Health Services Research 2014, 14:491  doi:10.1186/s12913-014-0491-7

Read more here.

Evidence summaries (decision boxes) to prepare clinicians for shared decision-making with patients

"Decision boxes (Dboxes) provide clinicians with research evidence about management options for medical questions that have no single best answer. Dboxes fulfil a need for rapid clinical training tools to prepare clinicians for clinician-patient communication and shared decision-making. We studied the barriers and facilitators to using the Dbox information in clinical practice"

Evidence summaries (decision boxes) to prepare clinicians for shared decision-making with patients: a mixed methods implementation study
AMC Giguere et al.
Implementation Science 2014, 9:144

Read more here.

Ideas into action: person-centred care in practice

"This report aims to inform health care professionals, commissioners and providers about what to consider when implementing shared decision making and self-management support as part of their drive to make person-centred care a reality."

Ideas into action: person-centred care in practice. What to consider when implementing shared decision making and self-management support
Health Foundation
October 2014

Read more here.

Person-centred care: from ideas to action

"This report is the product of work which has sought to bring together the evidence on shared decision making and self-management support, with the aim of providing greater coherence and clarity in debates about person-centred care."

Person-centred care: from ideas to action 
N Ahmad, J Ellins, H Krelle, M Lawrie
Health Foundation
October 2014

Read more here.

Towards a coherent measurement system to support person-centred care

"Commissioners who want to encourage providers to develop person-centred systems should be commissioning for high quality person-centred processes as well as high quality person-centred outcomes. Given this, there is an argument for us to redefine value as being not outcomes/cost, but quality/cost."

Measuring what really matters: towards a coherent measurement system to support person-centred care
A Collins
The Health Foundation
April 2014

Read more here.

Avoiding low-value care (video)

"The enormous cost of health care in the United States, driven in part by the fee-for-service payment system, has inspired new efforts to assess the true value of commonly provided services. When a service is widely recognized as providing little or no benefit, what should be done to reduce its use?"

Perspective roundtable: avoiding low-value care
AA Gawande, CH Colla, SD Halpern, BE Landon
New England Journal of Medicine, 2014, 370: e21

Watch the video discussion here.

One person, one team, one system (The Oldham report)

"Lessons need to be learnt from examples of more coordinated models of care in action. We believe achieving a shift towards coordinated, person-centred care requires a fundamental shift in the way that health and care is delivered, and can’t be achieved within the existing fragmented system."

One person, one team, one system: report of the Independent Commission on Whole Person Care for the Labour Party (the Oldham report)
Chaired by Sir John Oldham
February 2014

Read more here.

Involving patients in setting priorities for healthcare improvement

"Patient involvement can change priorities driving healthcare improvement at the population level. Future research should test the generalizability of these findings to other contexts, and assess its impact on patient care."

Involving patients in setting priorities for healthcare improvement: a cluster randomized trial
A Boivin, P Lehoux, R Lacombe, J Burgers, R Grol
Implementation Science, 2014, 9:24

Read more here.

A meta-analysis of how clinicians use decision aids

"Clinicians’ fidelity to usage instructions of point-of-care decision aids in randomized trials was suboptimal during their initial implementation in practice, which may have underestimated the potential efficacy of decision aids when used as intended."

Peering into the black box: a meta-analysis of how clinicians use decision aids during clinical encounters
KD Wyatt, ME Branda, RT Anderson, LJ Pencille, VM Montori, EP Hess, HH Ting, A LeBlanc
Implementation Science, 2014, 9:26

Read more here.

Barriers and facilitators to implement shared decision making in multidisciplinary sciatica care

This paper identified new barriers and facilitators for shared decision-making in the multidisciplinary care of sciatica and proposes that an effective implementation of SDM in a multidisciplinary setting should focus on these.

Barriers and facilitators to implement shared decision making in multidisciplinary sciatica care: a qualitative study
SN Hofstede, PJ de Mheen, MM Wentink, AM Stiggelbout, CLA Vleggeert-Lankamp, TPM Vlieland, L van Bodegom-Vos
Implementation Science, 2013, 8:95

Read more here.

Shared decision making does not influence physicians against clinical practice guidelines

"Intention to adopt shared decision making regarding the use of antibiotics to treat acute respiratory tract infections does not negatively influence physicians’ intention to use clinical practice guideline recommendations in the same clinical context, including after exposure to a training program in shared decision making."

Shared decision making does not influence physicians against clinical practice guidelines
M Guerrier, F Legare, S Turcotte, M Labrecque, LP Rivest
PLoS ONE, 2013, 8(4):e62537

Read more here.

Shared decision making to improve care and reduce costs

"A 2011 Cochrane Collaborative review of 86 studies showed that as compared with patients who received usual care, those who used decision aids had increased knowledge, more accurate risk perceptions, reduced internal conflict about decisions, and a greater likelihood of receiving care aligned with their values."

Shared decision making to improve care and reduce costs
E Oshima Lee, EJ Emanuel
New England Journal of Medicine, 2013, 368(1):6-8

Read more here.

Decision boxes for clinicians to support evidence-based practice and shared decision making

"Decision Boxes aim to prepare the clinician to communicate the risks and benefits of the available options to the patient so they can make an informed decision together."

Decision boxes for clinicians to support evidence-based practice and shared decision making: the user experience
A Giguere, et al.
Implementation Science, 2012, 7:72

Read more here.