Service user engagement and health service reconfiguration

"Patients and the public could be engaged through a wide variety of methods. In selecting which methods to employ locally, decision-makers should take into account the nature of the local population and of the proposed service changes. Problems often arose because decision-makers paid insufficient attention to issues considered important by the public."

Service user engagement and health service reconfiguration: a rapid evidence synthesis 
J Dalton, D Chambers, M Harden, A Street, G Parker, A Eastwood
Health Services and Delivery Research 2015;3(17)

Read more here.

Exploring CQC’s well-led domain: How can boards ensure a positive organisational culture?

"The paper has been written as a practical guide for board members in strengthening leadership and culture and in preparing for CQC inspections."

Exploring CQC’s well-led domain: How can boards ensure a positive organisational culture?
K Steward
The King's Fund
November 2014

Read more here.

People in control of their own health and care

"The idea that people should have a stronger voice in decisions about their health and care, and that services should better reflect their needs and preferences, has been a policy goal of politicians and senior policy-makers in health for at least 20 years. Patients want it, and the evidence shows that when they are involved, decisions are better, health and health outcomes improve, and resources are allocated more efficiently."

People in control of their own health and care: The state of involvement
C Foot et al.
The King's Fund
November 2014

Read more here.

Person-centred care: from ideas to action

"This report is the product of work which has sought to bring together the evidence on shared decision making and self-management support, with the aim of providing greater coherence and clarity in debates about person-centred care."

Person-centred care: from ideas to action 
N Ahmad, J Ellins, H Krelle, M Lawrie
Health Foundation
October 2014

Read more here.

Promoting engagement by patients and families to reduce adverse events

"While patient engagement in safety is an appealing approach, there is still little evidence regarding the particular details of implementation needed"

Promoting engagement by patients and families to reduce adverse events in acute care settings: a systematic review
Z Berger, TE Flickinger, E Pfoh, KA Martinez, SM Dy
BMJ Quality and Safety, 2014; 23: 548-555

Read more here.

Power to the people

"Whole-person, joined-up care would undoubtedly improve the patient experience, improve health outcomes and be much more cost-effective."

Power to the people: the mutual future of our National Health Service
M Girach, K Sikora, A Wildman
ResPublica
May 2014

Read more here.

Reducing the need for restrictive interventions

"Wherever possible, people who use services, family carers, advocates and other relevant representatives should be engaged in all aspects of planning their care including how to respond to crisis situations, post-incident debriefings, rigorous reporting arrangements for staff and collation of data regarding the use of restrictive interventions." 

Positive and Proactive Care: reducing the need for restrictive interventions
Social Care, Local Government and Care Partnership Directorate
Department of Health
April 2014

Read more here.

Socio-technical allocation of resources

"This Casebook describes a new approach to priority setting called Star (Socio-technical allocation of resources). The approach combines value for money analysis with stakeholder engagement. This allows those planning services to determine how resources can be most effectively invested, while the engagement of stakeholders means the decisions are understood and supported by those most affected." 

STAR – Socio-technical allocation of resources: engaging stakeholders in decisions 
M Airoldi
London School of Economics
March 2014

Read more here. You can access the accompanying case study here.

House of Care model

"NHS England and partners are using the ‘House of Care’ model as metaphor for these building blocks of high quality person-centred coordinated care. The House relies on four key interdependent components, all of which must be present for the goal, person-centred coordinated care, to be realised:

• Commissioning 
• Engaged, informed individuals and carers
• Organisational and clinical processes
• Health and care professionals working in partnership"

Find out more and access all the resources here.

A meta-analysis of how clinicians use decision aids

"Clinicians’ fidelity to usage instructions of point-of-care decision aids in randomized trials was suboptimal during their initial implementation in practice, which may have underestimated the potential efficacy of decision aids when used as intended."

Peering into the black box: a meta-analysis of how clinicians use decision aids during clinical encounters
KD Wyatt, ME Branda, RT Anderson, LJ Pencille, VM Montori, EP Hess, HH Ting, A LeBlanc
Implementation Science, 2014, 9:26

Read more here.

UK Strategy for Rare Diseases

"This document sets out how NHS England will play its part in delivering the UK Strategy for Rare Diseases in England. A more detailed plan will be built into the five year strategy, for specialised services, currently being developed by NHS England."

UK Strategy for Rare Diseases: NHS England Statement of Intent
NHS England
February 2014

Read more here.

Engaging with individual patients

"Part of the Smart Guides to Engagement series, this guide helps clinical commissioning groups (CCGs) and service providers to enable and support the engagement of individuals with healthcare services."

Smart guides to engagement: Engaging with individual patients
D Redding
NHS Networks
December 2013

Read more here.

Role of the voluntary sector in providing commissioning support

"There are some areas of commissioning support where the voluntary sector offers particular expertise, including needs-assessments, business intelligence, service re-design, and public and patient engagement."

Role of the voluntary sector in providing commissioning support
H Holders
Nuffield Trust
November 2013

Read more here.

Health literacy and health information producers

"Health literacy is broadly about an individual’s ability to make sound health decisions in the context of everyday life and as such, it is an important aspect of their capacity to manage their health and care."

Health literacy and health information producers: report of the findings of a UK wide survey of information producers and providers
Patient Information Forum
October 2013

Read more here.

Journey into the world of patient experience

"Communication between provider and patient, and between providers, was a significant theme. People wanted to be dealt with directly and clearly, and they wanted to be assured that their multiple providers were talking to each other directly and clearly too."

Journey into the world of patient experience: lessons learned and projects underway
C Fooks
The Change Foundation
September 2013

Read more here.

Patient and public engagement - still an aspiration?

"Local health economies have so far not been successful in engaging with patients and the public."

Patient and public engagement - still an aspiration?
Tea Break Debates
Primary Care Commissioning, People Matters Network
July 2013

Read more here.

The NHS belongs to the people

"Better management by patients will mean fewer hospital visits and lower costs to the NHS overall."

The NHS belongs to the people
NHS England
July 2013

Read more here.

Putting patients at the centre of care

"Technology brings enormous benefits to healthcare, but as medicine becomes increasingly high-tech it becomes more daunting, so the need for the ‘human touch’ increases to compensate."

Won't you please, please help me?
NHS Confederation Briefing - issue 264
June 2013

Read more here.

The business case for people powered health

"The Business Case for People Powered Health describes the specific investments required to create services with a People Powered Health approach, and the practical benefits that can be achieved as a result."

The business case for people powered health
NESTA
April 2013

Red more here.

People powered health: health for people, by people and with people

"This report, and the programme it’s part of, make the case for changing the ways in which healthcare is organised. Specifically they show how healthcare can better combine the very best scientific and clinical knowledge with the expertise and commitment of patients themselves, as well as the families, communities and networks that they are part of."

People powered health: health for people, by people and with people
M Horne, H Khan, P Corrigan
NESTA
April 2013

Read more here.