Progressing patient and public involvement in healthcare improvement

"Our findings point to a need to re-evaluate methods and approaches for involving patients and the public in all aspects of healthcare and in healthcare improvement. Partnership working has long been the explicit stated goal of involvement. However, current involvement practices at a national and local level often involve a narrow group of individuals in involvement activities, with little consideration given to including a broader demographic of the population."

From tokenism to empowerment: progressing patient and public involvement in healthcare improvement
J Ocloo, R Matthews
BMJ Quality and Safety 2016;25:626-632 doi:10.1136/bmjqs-2015-004839

Read more here.

Podiatry education to empower patients to self-care

"This project was designed to identify and train patients suitable for self-care, so they can be discharged from the service. This helped to ensure that podiatry care is targeted at those with the greatest need. "

Podiatry education to empower patients to self-care
Quality and productivity collection example
Community and Primary Services, Sheffield Teaching Hospitals NHS Foundation Trust
July 2015

Read more here.

Transforming our health care system: Ten priorities for commissioners

"We have identified ten priorities for action. A striking feature of all the priorities is the degree to which they call for change within primary care and the way in which primary care relates to the rest of the system. "

Transforming our health care system: Ten priorities for commissioners
C Naylor et al.
The King's Fund
April 2015

Read more here.

Technology Enabled Care Services: Resource for Commissioners

"The Technology Enabled Care Services Resource for Commissioners has been developed by NHS commissioners to identify practical tools that can help maximise the value of technology enabled care services for patients, carers, commissioners and the whole health economy"

Technology Enabled Care Services: Resource for Commissioners
NHS Commissioning Assembly
January 2015

Read more here.

Service user involvement: impact and participation: a survey of service user and staff perspectives

"The findings have shown that there is a high level of participation in service user involvement activity and a general endorsement that involvement has a positive impact. The percentage of service users and professionals who reported positive outcomes from activities they have been involved with was high, regardless of the type of activity they had experienced and their level of engagement in user involvement work."

Service user involvement: impact and participation: a survey of service user and staff perspectives
E Omeni, M Barnes, D MacDonald, M Crawford, D Rose
BMC Health Services Research 2014, 14:491  doi:10.1186/s12913-014-0491-7

Read more here.

Rethinking the patient

"Burden of Treatment Theory is oriented to understanding how capacity for action interacts with the work that stems from healthcare. Burden of Treatment Theory is a structural model that focuses on the work that patients and their networks do. It thus helps us understand variations in healthcare utilization and adherence in different healthcare settings and clinical contexts."

Rethinking the patient: using Burden of Treatment Theory to understand the changing dynamics of illness
CR May et al.
BMC Health Services Research 2014, 14:281

Read more here.

Diagnosing bowel cancer early: right test, right time

"With the added pressures that the increase in demand is likely to present, ensuring endoscopy units continue to be of the highest quality is paramount to prevent people from dying prematurely."

Diagnosing bowel cancer early: right test, right time
Bowel Cancer UK
2014

Read more here.

Patient empowerment: for better quality, more sustainable health services globally

"This report highlights some of the lessons and examples from this increasingly global patient empowerment movement. The primary focus is on the role of individuals in their own healthcare, although overlap with the equally important issues of public involvement in health and empowerment in social care are recognised."

Patient empowerment: for better quality, more sustainable health services globally

All Party Parliamentary Groups on Global Health; HIV/AIDs; Population, Development and Reproductive Health; Global Tuberculosis; and Patient and Public Involvement in Health and Social CareMay 2015

Read more here.

Health literacy and health information producers

"Health literacy is broadly about an individual’s ability to make sound health decisions in the context of everyday life and as such, it is an important aspect of their capacity to manage their health and care."

Health literacy and health information producers: report of the findings of a UK wide survey of information producers and providers
Patient Information Forum
October 2013

Read more here.

Patient empowerment in long-term conditions

"Although many measures of empowerment exist, no measure has been developed specifically for patients with long-term conditions in the primary care setting. This study presents preliminary data on the development and validation of such a measure."

Patient empowerment in long-term conditions: development and preliminary testing of a new measure
N Small, P Bower, CA Chew-Graham, D Whalley, J Protheroe
BMC Health Services Research, 2013, 13:263

Read more here.

Investment in patient information improves outcomes and reduces costs

"If we fail to provide patients with the information and support they need, we compromise all three dimensions of quality care – patient experience, patient safety and clinical effectiveness."

Making the case for information: the evidence for investing in high quality health information for patients and the public
Patient Information Forum
June 2013

Read the full report here or the executive summary here.

The Patient Information Forum has produced three summary briefings to accompany this report:
PiF Briefing Summary: Health information specialists
PiF Briefing Summary: Policy makers and commissioners
PiF Briefing Summary: Health professionals

Guide to the healthcare system in England

This guide has been written to explain about all the different organisations that "play a key role in making the NHS what it is."

Guide to the healthcare system in England
NHS England
May 2013

Read more here.

Patient empowerment

"Healthcare policy is driving the need to consider patient empowerment as a measurable patient outcome from healthcare services."

Patient empowerment: the need to consider it as a measurable patient-reported outcome for chronic conditions
M McAllister, G Dunn, K Payne, L Davies, C Todd
BMC Health Services Research, 2012, 12:157

Read more here.