Prioritising person-centred care - the evidence

"In our search for evidence we looked at how patient involvement interventions contribute to four key outcomes:

•   improving people’s knowledge
•   enhancing people’s experience of services
•   impact on service use and cost, and
•   impact on people’s health"

Prioritising person-centred care - the evidence: summarising evidence from systematic reviews
National Voices
2014

Read more and access the summaries/guides here.

Essential reading on integrated care and shared decision making

The NHS QIPP Right Care team have updated two of their essential reading lists:

• Integrated care
• Shared decision-making

The reading lists highlight key research intended to introduce you to the most important information available on the topics. Where they are freely available, full text articles are linked to. If you need any help accessing any of the articles then please get in touch or visit the Medical Library.

Patient-initiated questions: how can doctors encourage them and improve the consultation process?

"This study highlights the importance of careful explanation of diagnostic evidence as a factor contributing to increased patient involvement."

Patient-initiated questions: how can doctors encourage them and improve the consultation process? A qualitative study
GM Murtagh, L Furber, AL Thomas
BMJ Open, 2013, 3:e003112

Read more here.

Health literacy and health information producers

"Health literacy is broadly about an individual’s ability to make sound health decisions in the context of everyday life and as such, it is an important aspect of their capacity to manage their health and care."

Health literacy and health information producers: report of the findings of a UK wide survey of information producers and providers
Patient Information Forum
October 2013

Read more here.

Implementing shared decision-making

"Normalizing shared decision making requires intensive work to ensure teams have a shared understanding of the purpose of involving patients in decisions, and undergo the attitudinal shifts that many health professionals feel are required when comprehension goes beyond initial interpretations."

Patchy 'coherence': using normalization process theory to evaluate a multi-faceted shared decision making implementation program (MAGIC)
A Lloyd, N Joseph-Williams, A Edwards, A Rix, G Elwyn
Implementation Science, 2013, 8:102

Read more here.

Primary care: our first line of defence

"The evidence shows that good access to primary care can help us live longer, feel better, and avoid disability and long absences from work."

Primary care: our first line of defence
Health Reform and You Brief
The Commonwealth Fund
June 2013

Read more here.

Your health – your decision

"The aim of this publication is to spread the learning and the results from the AQuA workstream of the National QIPP Right Care Shared Decision Making Programme and to complement the wide range of resources that have been developed to support the continued embedding of Shared Decision Making so that more patients can benefit."

Your health – your decision
Advancing Quality Alliance Workstream, National Shared Decision-Making Programme
May 2013

Read more here.

Making the case for information

"The evidence for investing in high quality health information for patients and the public."

Making the case for information
Patient Information Forum
May 2013

Read more here.

The MAGIC programme: evaluation

"An independent evaluation of the MAGIC (Making good decisions in collaboration) improvement programme."

The MAGIC programme: evaluation
The Health Foundation
April 2013

Read more here.

Implementing shared decision-making

"Clinical teams’ experiences of implementing shared decision making as part of the MAGIC (Making good decisions in collaboration) programme. "

Implementing shared decision-making
The Health Foundation
April 2013

Read more here.

Doctor Know: a knowledge commons in health

"In this paper, we argue that society’s growing ability to mobilise knowledge from different fields and sources is beginning to show the potential of a ‘knowledge commons’ in healthcare: an open system of knowledge with researchers, practicing clinicians, patients, their families and communities all involved in capturing, refining and utilising a common body of knowledge in real time."

Doctor Know: a knowledge commons in health
J Loder, L Bunt, JC Wyatt
March 2013

Read more here.

Patient online: the road map

"Patient Online describes access by patients to online services (booking and cancelling of appointments, ordering of repeat prescriptions), online communication with the practice and online records."

Patient online: the road map
The Royal College of General Practitioners
March 2013

Read more here.

Embedding patient decision aids in clinical practice

"NHS Kidney Care is promoting the use of the Right Care Shared Decision Making Programme Patient Decision Aids by supporting 24 kidney units across England to embed them into routine care so that all people approaching end stage renal failure receive consistent, comprehensive, high quality information, and engage in and share decisions about their care in the way best suited to them."

Embedding patient decision aids in clinical practice: a survey from NHS Kidney Care
NHS Kidney Care
January 2013

Read more here.

Patient and public engagement

"There will be different types and levels of appropriate engagement depending on the situation, from involvement of individual members of the public in shared decision-making about their own health and care, to local community engagement in co-production of services."

Patient and public engagement: a practical guide for health and wellbeing boards
NHS Confederation
November 2012

Read more here.

Operating principles for joint strategic needs assessments and joint health and wellbeing strategies

"JSNAs and JHWSs are not ends in themselves, but a means to identify the priorities for commissioning to improve health and wellbeing outcomes and reduce health inequalities."

Operating principles for joint strategic needs assessments and joint health and wellbeing strategies
NHS Confederation
November 2012

Read more here.

Personal health records: putting patients in control?

"Those with complex, chronic conditions, often with more than one long term condition, are most likely to find a personal health record useful and have the most to gain in the first instance."

Personal health records: putting patients in control?
J Cruickshank, C Packman, J Paxman
2020health.org
September 2012

Read more here.

Decision aids helped to lower hip and knee surgery rates and costs

"In a large observational study, patients who received balanced information on the risks
and benefits of orthopedic procedures had 26 percent fewer hip replacement surgeries, 38 percent fewer knee replacement surgeries, and 12 percent to 21 percent lower costs over a six-month period."

Introducing decision aids at Group Health was linked to sharply lower hip and knee surgery rates and costsThe Commonwealth Fund
September 2012

Read more here.

Participation in decision-making of persons with dementia

"Persons with moderate dementia demonstrated variability in how they participated in decision making."

How do persons with dementia participate in decision making related to health and daily care? A multi-case study
KL Smebye, M Kirkevold, K Engedal
BMC Health Services Research, 2012, 12:241

Read more here.

Helping people share decision making

"Helping people share decisions brings together the evidence of the impact of shared decision making on the quality of healthcare as defined by the Institute of Medicine’s six dimensions of quality: safe, effective, timely, patient-centred, efficient and equitable care."

Helping people share decision making
The Health Foundation
June 2012

Read more here.

Guide to health records access

The Patient Information Forum has prepared a guide about shared Personal Health Records (PHRs), aimed at health practitioners, managers, and patient organisations in health and social care in the UK.

Read more here.