Under the scan: patients’ views of X-rays and scans in the UK

"The survey findings highlight the current lack of capacity in UK radiology services to deliver X-ray and scan results for all patients within 28 days."

Under the scan: patients’ views of X-rays and scans in the UK

The Patients Association and The Royal College of Radiologists

August 2016

Read more here. 

An ethnographic study of patient perceptions and influence on quality improvement

"When including patient voices in measuring and defining ‘quality’, governments and public health practitioners need to be aware of how neoliberal rationalities at the heart of the policy and services context could prevent patients from seeing themselves as subjects of rights to quality care and as actors “with ‘the right to claim rights” to quality care."

Developing patient-centred care: an ethnographic study of patient perceptions and influence on quality improvement
A Renedo, C Marston
BMC Health Services Research 2015, 15:122  doi:10.1186/s12913-015-0770-y

Read more here.

Is the NHS becoming more person-centred?

"This overview examines how the NHS in England has performed over this parliament in relation to indicators that reflect person-centred care. We consider a range of measures including: dignity, respect and compassion; patient involvement in decisions; support for self-management and care planning."

Is the NHS becoming more person-centred?
S Wood, A Collins, A Taylor
The Health Foundation
March 2015

Read more here.

Decisions of Value

"Decisions of Value is a project led by the Academy of Medical Royal Colleges and the NHS Confederation that has spent six months studying what is influencing the decisions made in the NHS. It brings together a large amount of research to show how decisions impact on the value delivered and how this extends beyond Whitehall to the front line."

Decisions of Value: full report and findings
NHS Confederation, Academy of Medical Royal Colleges
October 2014

Read more here.

Hospital discharge of the elderly - functions, variability and performance-shaping factors

"Precision issues related to (1) decision-making criteria concerning the medical fitness decision and appropriate level of care, (2) quality of discharge planning, (3) degree of patient involvement, and (4) quality of information transfer."

Hospital discharge of the elderly-an observational case study of functions, variability and performance-shaping factors
K Laugaland, K Aase, J Waring
BMC Health Services Research 2014, 14:365

Read more here.

Prioritising person-centred care - the evidence

"In these pages you can find the evidence from 779 systematic reviews of ways to make person centred care happen. We provide accessible and accurate information so commissioners, health professionals and service-user groups can see what works best and how to invest time and resources."

Prioritising person-centred care - the evidence
National Voices
June 2014

Read more here.

Supporting people to manage their health

"In the United Kingdom, patient activation has largely been considered in relation to supporting patient involvement in health care. Given the links between low levels of activation and poor outcomes, the role of the Patient Activation Model in addressing health inequalities should be considered further."

Supporting people to manage their health: an introduction to patient activation
J Hibbard, H Gilburt
The King's Fund
May 2014

Read more here.

Reducing the need for restrictive interventions

"Wherever possible, people who use services, family carers, advocates and other relevant representatives should be engaged in all aspects of planning their care including how to respond to crisis situations, post-incident debriefings, rigorous reporting arrangements for staff and collation of data regarding the use of restrictive interventions." 

Positive and Proactive Care: reducing the need for restrictive interventions
Social Care, Local Government and Care Partnership Directorate
Department of Health
April 2014

Read more here.

Mental Healthwatch handbook

"This handbook provides information on how Healthwatch can help improve mental health with a range of partners including central government, service users, comissioners, providers, the voluntary sector and councils."

Mental Healthwatch handbook: Improving mental health with your community
National Survivor User Network
April 2014

Read more here.

Bite-size guides to support patient and public participation

NHS England has developed four bite-size guides to support patient and public participation in the NHS. These guides are linked to the Transforming participation in Health and Social Care guidance (published September 2013).

Access the guides via the following links:

1. Principles for Participation in Commissioning
2. Governance for Participation
3. Planning for Participation
4. Budgeting for Participation

Health service redesign: from structure to function

"The findings suggest that large scale redesign projects are difficult to sustain because of changing circumstances, staff turnover, and the challenge of maintaining momentum. A more realistic approach centres on building teams, with local leadership, focussed on clinical/patient concerns and engagement with services provided outside hospital."

Theme 1: Health service redesign: from structure to function: the impact of change
A Hewison
Collaborations for Leadership in Applied Health Research and Care: Birmingham and Black Country
University of Birmingham, National Institute for Health Research
2014

Read more here.

Involving patients in setting priorities for healthcare improvement

"Patient involvement can change priorities driving healthcare improvement at the population level. Future research should test the generalizability of these findings to other contexts, and assess its impact on patient care."

Involving patients in setting priorities for healthcare improvement: a cluster randomized trial
A Boivin, P Lehoux, R Lacombe, J Burgers, R Grol
Implementation Science, 2014, 9:24

Read more here.

A meta-analysis of how clinicians use decision aids

"Clinicians’ fidelity to usage instructions of point-of-care decision aids in randomized trials was suboptimal during their initial implementation in practice, which may have underestimated the potential efficacy of decision aids when used as intended."

Peering into the black box: a meta-analysis of how clinicians use decision aids during clinical encounters
KD Wyatt, ME Branda, RT Anderson, LJ Pencille, VM Montori, EP Hess, HH Ting, A LeBlanc
Implementation Science, 2014, 9:26

Read more here.

Engaging with individual patients

"Part of the Smart Guides to Engagement series, this guide helps clinical commissioning groups (CCGs) and service providers to enable and support the engagement of individuals with healthcare services."

Smart guides to engagement: Engaging with individual patients
D Redding
NHS Networks
December 2013

Read more here.

Patient-centredness in integrated healthcare delivery systems

"If providers and payers can take into account patient needs and expectations while implementing innovative healthcare delivery systems, greater acceptance and satisfaction will be achieved."

Patient-centredness in integrated healthcare delivery systems
C Juhnke, AC Muhlbacher
International Journal of Integrated Care, 2013, 13

Read more here.

Patient-initiated questions: how can doctors encourage them and improve the consultation process?

"This study highlights the importance of careful explanation of diagnostic evidence as a factor contributing to increased patient involvement."

Patient-initiated questions: how can doctors encourage them and improve the consultation process? A qualitative study
GM Murtagh, L Furber, AL Thomas
BMJ Open, 2013, 3:e003112

Read more here.

Journey into the world of patient experience

"Communication between provider and patient, and between providers, was a significant theme. People wanted to be dealt with directly and clearly, and they wanted to be assured that their multiple providers were talking to each other directly and clearly too."

Journey into the world of patient experience: lessons learned and projects underway
C Fooks
The Change Foundation
September 2013

Read more here.

A National Health Service for patients

"This paper proposes that Patient-led Commissioning Groups (PCGs) be allowed to set up alongside existing Clinical Commissioning Groups, in order to establish the accountability of the NHS to patients and the public."

A National Health Service for patients
A Howes
Civitas
September 2013

Read more here.

Transforming participation in health and care

"This guide will help clinical commissioning groups (CCGs) and other commissioners of health and care services to involve:

• patients and carers in decisions relating to care and treatment
• the public in commissioning processes and decisions."

Transforming participation in health and care
NHS England
September 2013

Read more here.

The NHS belongs to the people

"Better management by patients will mean fewer hospital visits and lower costs to the NHS overall."

The NHS belongs to the people
NHS England
July 2013

Read more here.